Family & Sibling Support / Counseling

Sibshops:
Sibshops are lively celebrations of the many contributions made by brothers and sisters of kids with special needs.  Sibshops are an opportunity for siblings to get peer support and educational within a recreational context. 

St. Louis based Sibshop agencies:

St. Louis Arc 314-817-2275
TouchPoint Autism Services 314-432-6200
United Services 636-926-2700

Brain Injury Association of Missouri 314-426-4024
10270 Page Ave. Ste 100, St. Louis, MO 63123
The Brain Injury Association of Missouri (BIA-MO) is a 501(C)3 non-profit organization. We provide support, education, recreation, referral services and advocacy for persons with brain injury and their families as well as professionals and the community.

Bridges Community Support Services Inc. 314-781-7900 or 800-427-2699
3114 Sutton Blvd., Maplewood, MO 63143

Behavior
Support to persons with developmental and physical disabilities and their families. Services include: interpersonal and family counseling, behavior therapy, psychotherapy, consultation, positive behavioral support, in-home and community rehabilitation, and support needs of those affected by traumatic brain injury (TBI), community integration/home management program, independent supported living (ISL), and agency staff training.

All forms of payment accepted.

Family & Sibling Support
Counseling for individuals, couples, families, and children of all ages by fully licensed staff with the specialized expertise to support individuals facing the challenge of mental health issues and/or developmental disabilities, including learning disabilities, attention deficit disorder, mental retardation, traumatic brain injury, and physical disabilities.

Services include: interpersonal and family counseling, behavior therapy, psychotherapy, consultation, and positive behavioral support.

All forms of funding accepted.

CHADS Coalition for Mental Health 314-952-2026
The Dora Project 314-952-8274
P.O Box 510528, St. Louis, MO 63151
CHADS works to advance the knowledge and awareness of adolescent depression and suicide through awareness, education, and research. The Dora Project, serves families with children (primarily ages 12 – 22) suffering from depression or other emotional challenges. Its goal is to provide personal support and assistance in obtaining mental health and other resources for you and your child during a time of crisis. Services are provided at no cost.

Children and Adults with Attention Deficit/ Hyperactivity Disorder (CHADD)
CHADD provides support groups for individuals with AD/HD and their families.

Comprehensive Substance Abuse Treatment & Rehabilitation (CSTAR) 314-772-2205

Delta Gamma Center for Children with Visual Impairments 314-776-1300
1750 S. Big Bend Blvd., Richmond Heights, MO 63117

Education, Advocacy & Parent Training
The Center offers a comprehensive array of highly specialized educational and therapy services for eligible children and their families from diagnosis until 36 months of age. Parents and other caregivers receive guidance on how to meet the child’s needs throughout their daily routines through assessment, demonstration of activities and recommendations for adaptations in the child’s environment. All services are offered at home and other community sites, such as day care centers. Families are provided assistance with transition into preschool services in their local school district when their child turns three years.

Early Intervention
Comprehensive family-centered early intervention for families of children, birth to 3, with visual impairments, including individuals with additional disabilities.  Must reside within a 50 mile radius. Center-based services: parent-child classes and educational workshops for parents. Home-based services: educational services from a teacher of the visually impaired, orientation and mobility training, family support, and occupational, physical and speech therapy services as needed. Consultation to other facilities is also available.

Family & Sibling Support
In an effort to provide families with opportunities for connections, information and support, a wide array of individual and group family support services are offered.  Individual services include short-term consultation about family concerns including information about visual impairments or community resources and a parent-to-parent program.   A variety of activities and specialized groups are offered throughout the year for families, parents, grandparents, siblings, and youth, ages three through high school, who are visually impaired or blind.

for information about
St. Louis Family Support and Respite Coalition please contact members:

Allison LaMont – 314-776-1300
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Down Syndrome Association of Greater St. Louis  314-961-2504
8531 Page Ave, Suite 120 St. Louis, MO 63114

The Down Syndrome Association of Greater St. Louis aims to benefit the lives of people with Down Syndrome and their families through individual and family support, education, public awareness, and advocacy.

for information about
St. Louis Family Support and Respite Coalition please contact members:

Erin Suelmann
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Christy Klaus
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Easter Seals Midwest 314-432-6200
10176 Corporate Square Drive, Suite 150 St. Louis, MO 63132

Behavior Therapy
Services in 30, 45, or 60-minute intervals. Efforts made to coordinate mutually convenient time between therapist and family. Each session focuses on the individual’s behavioral issues, as determined from their TouchPoint Assessment and goals set by the family. TouchPoint therapists incorporate methodologies specifically designed to assist and support the individual in learning how to make appropriate choices from a selection of options. BT services may also focus on social skills, such as how to conduct themselves in a social setting or how to react in a stressful situation.

Two-week Parent Training Program offered each month year-round. It is intensive, M-F, approximately 8:30 a.m.—4:30 p.m. Parents are presented with workshops, videos, handouts, and each day an opportunity to observe a trainer work with their child. During the Training, parents begin to implement what they are learning in their classroom sessions with their child during exchange sessions. To ensure content understanding, parents have homework each evening to complete. This course may be taken for college credit, if desired.

In-Home Parent Training
A trainer comes to the family’s home for two hours a week over a 12 weeks period.  During visits, workshops are presented.  In addition, trainer observes family’s home environment and offers suggestions for restructure to present a more “workable” arrangement.  Trainers may also offer ideas on using existing materials within the home to teach and communicate more effectively with their child.  The child need not be present for these sessions, but coaching and modeling can occur if they are at home.

Staff can also educate parents on how to advocate for their child within their specific school system, and may, upon request and authorization, offer consultation services as desired.

Sibshops

Family & Sibling Support
Each group takes on an educational component to teach family members about specific methodology to teach their children skills for independence.  As well, they allow family members to share their experiences with others. Connections Groups are in North County, North City, South City, and West County.

Also available: Parents of a Child w/ an Autism Spectrum Disorder, Sibling Support Groups, Natural Support Workshops, and Social Support Group for Young Adults w/ Asperger’s Syndrome.

Temporary Residential Support
Support to families affected by autism and/or other behavioral challenges in or out of family’s home.  Services may be available days, evenings, and overnights in varying lengths of time, based on provider availability.  Currently offered to residents in St. Louis City and St. Charles & St. Louis Counties.

Therapy—Occupational, Physical, & Speech
Clinical Services offers speech/language, pragmatic language, occupational/sensory integration and music therapies in 30, 45 or 60-minute intervals. Efforts made to coordinate mutually convenient time between therapist and family.  Session focus is on the individual’s particular issues as determined from one of  TouchPoint’s Assessments, as well as goals set by the family.

Therapists incorporate methodologies specifically designed to assist and support the individual in learning how to express themselves and/or their emotions appropriately, both one-on-one and in peer/social situations, and/or make appropriate choices from a selection of options within their environment.

Music Therapy offers at least four ways music can benefit an individual with autism (communication, cognition, sensory integration, and behavior/social integration).

for information about
St. Louis Family Support and Respite Coalition please contact members:

Kait Calys-Strohm – 314-432-6200 ext. 1375
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Hayley Menges – 314-567-8190
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Theresa Deiters
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Epilepsy Foundation of the St. Louis Region 314-962-3900  (http://old.epilepsyfoundation.org/local/stlouis/ not working)
164 Crestwood Plaza, Suite 100, St. Louis, MO 63126
The Epilepsy Foundation of Missouri & Kansas leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy.

Family Support Network Program 314-918-3301
110 N. Elm, St. Louis, MO 63119

In-home, weekly family/individual counseling, parent education, resource acquisition, and follow-up to families with children ages birth—13 years for all developmental disabilities in St. Louis City and St. Louis Counties.

FamilyForward

9445 Litzsinger Rd., St. Louis, MO  63144 phone 314-918-0492
2424 Muegge Rd., St. Charles, MO  63303 phone 636-940-1119

The Family Support Partner program provides support for the children and families of St. Louis County who struggle with a developmental disability (physical, emotional, or mental).

Services include, but are not limited to, advocacy and support in school settings (for example, attending IEP meetings as a support to the family), assistance in navigating complex systems such as the Department of Mental Health, Social Security, etc. as well as connecting the child and family to community resources.

Temporary Residential Support
Facility-based setting for  individuals birth—21 years with significant, multiple developmental disabilities who are non-ambulatory. Health needs may be met by our nursing oversight. Serves individuals in St. Louis City and Jefferson, St. Charles, & St. Louis Counties.

For inquiries:
St. Charles site, contact Site Director at 636-940-1119
Brentwood site, contact Site Director at 314-918-0492 x308

Therapy—Occupational, Physical, & Speech familyforwardmo.org
Facility-based setting for individuals birth—21 years who are non-ambulatory.  Serves individuals with medical needs in St. Louis City and Jefferson, St. Charles, & St. Louis Counties.

For information about
St. Louis Family Support and Respite Coalition please contact:

Monique Mitalovich – 314-918-0492, ext. 308 - O
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Fragile X Resource Center of Missouri 314-997-0431

336 Country Club Dr, Ballwin, MO 63011
The Fragile X Resource Center of Missouri unites the local community to enrich lives through educational and emotional support, promote public and professional awareness, and support research toward improved treatments.  

Greater St. Louis Association for the Deaf 314-222-2318
2190 Creve Coeur Mill Road, Maryland Heights, MO 63043
GSLAD’s mission is to provide social, charitable, athletic and educational opportunities for members of GSLAD and friends of the Deaf in the Metropolitan St. Louis area.

Do you long for a place where your entire family can rest and be encouraged?

Get in touch with us about coming to our family retreat!


If you’re looking for a home church for your family, we would love to connect you with a welcoming church community close to you.
 If your church wants to learn more about ministering to people with special needs, we train churches in how to do just that.


Do you have a manual wheelchair that you don’t know what to do with? We’ll take it, refurbish it, and give it to someone living in another country.


Joni and Friends Missouri wants to love and encourage you and your family in every way we can. Let us know how we can support you.

For information about Joni and Friends Missouri
please contact:

David Smith, D.Min.
Area Director, Missouri
Joni and Friends Missouri
314.773.5664
Direct line: 314.924.3204
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joniandfriends.org

Missouri Statewide Parent Advisory Network Mo-SPAN  314-972-0600
440 Rue St. Francois
Florissant, MO 63031

The mission of MO-SPAN (Missouri Statewide Parent Advisory Network) is to improve the lives of children and youth with severe emotional disturbance (SED) and their families by supporting and mobilizing families through training, education, advocacy, and system change.

Paraquad 314-289-4200  TTY 314-289-4252
5240 Oakland Avenue, St. Louis, MO 63110
Works to ensure equal access to services, education, employment, transportation, housing, and health care for people with disabilities.

Paraquad’s guiding principle is to advance the independent living philosophy.

Community Education Program
Paraquad strives to educate individual citizens, community-based organizations, and policy makers through disability awareness workshops to businesses, service providers, rehabilitation centers, religious organizations, colleges, and universities.  Self-advocacy skills are taught to participants.

Advocacy
Systems advocacy is provided through Public Policy Dept. whose issues include, but are not limited to:  equal opportunities for housing, transportation, employment, access to community activities, and public services. Through individual and family consultation, young people with disabilities and their families are introduced to the independent living concept.

Youth Group  TTY (314) 289-4201
Youth group consists of youth with and without disabilities. This integrated group develops social skills they cannot acquire in segregated settings, while non–disabled youth learn to see their disabled peers as people.

Independent Living Centers 
Private, not-for-profit, community-based Center for Independent Living.

Programs include, but are not limited to:
information & referral, housing assistance & referral, independent living adult, individual & family consultation, Personal Assistance Services (PAS), peer consultation, career options & employment services, deaf & hard of hearing, Deaf Education Fund, Deaf Way Interpreting Services, community education, youth group, Thelma P. Zalk Educational Endowment Fund, advocacy, community outreach, volunteer, internship, continuing education, People First Self-Advocacy Group, and community links volunteer.

Parkway Parents Advisory Council for Children with Disabilities (PACCD) 314-415-8071
The Parkway Parent Advisory Council for Children with Disabilities (PACCD) is a volunteer parent organization of the Parkway School District much like a Parent Teacher Organization (PTO).

Prader-Willi Syndrome Association 800-926-4797

Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

Provident Counseling 314-371-6500
2650 Olive Street, St. Louis, MO 63103
Provident Counseling serves consumers of all ages in St. Louis County with developmental disabilities and their families. Psychotherapy/counseling services to individuals, couples, families, or groups.

To schedule an initial appointment, call 314-533-8200