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family circlemask

Caregiving is a marathon -
            often long term and lifelong

According to Health Resources and Services Administration (HRSA) finds:

  • One in five U.S. families have a child with a chronic physical, developmental, behavioral or emotional condition

Family Caregiver Alliance finds:

  • Families are the primary caregiver for adults with developmental disabilitiesgraph test01
    • 76% of these adults live at home
    • In 25% of these homes the caregiver is over 60 years of age
  • Elderly caregivers have a 63% higher mortality rate than their non-caregiving peers

  • Caregivers have higher rates of health issues and depression than the general population

 

Myths and Truths

Breaking down misconceptions and fears

 

Myth: It is my job to provide full-time care for my loved one.
Truth: While taking full responsibility for caregiving is an honorable goal, providing full-time care takes a toll on health and wellness.

Myth: Asking others for help is a sign of weakness.
Truth: Asking for help shows self-awareness, and is good for the entire family. A stressed out caregiver impacts the health and wellness of the family.

Myth: If I access respite care for my loved one, people will judge me as a poor caregiver.
Truth: All families are encouraged to access family support and respite care. Regularly scheduled time off serves as a method of abuse prevention. Getting a break provides renewed energy and improves caregiving.

Conclusion:
Caregiving for a loved one with a disability is hard work.
Every care giver needs a break
Even more important for those caring for someone with disabilities
Caregivers with limited family support, social or financial resources are most in need of a break